This is Bryan, a bright 11 year old boy. He was recently diagnosed with Transverse Myelitis (TM). TM is a rare inflammatory disease causing injury to the spinal cord with varying degrees of weakness, sensory alterations, and autonomic dysfunction (the part of the nervous system that controls involuntary activity such as the heart, breathing, the digestive system and reflexes. He has been in the hospital for 2 months now after being perfectly fine with no signs of disease. He now has a Tracheostomy and requires a ventilator to breathe. He has a feeding tube to supplement feedings. He is not able to walk at this time and there is a chance that he may never be able to walk again. He is getting physical, occupational and speech therapy currently at Children's. Bryan's dad now works 60-70 hours a week to try to make ends meet with their increasing bills while his mom had to quit her job to be with him. We were able to provide this amazing family with the rent payment they were struggling to make. To learn about more families we help please click here.
After taking a trip to Costa Rica and seeing the other side of the world in developing countries we were struck by the vast population of underprivileged people. We met many underprivileged children while on our trip that taught us about love and compassion for others. We realized that these kind of stories were not just in developing countries but in our own backyard as well. So we set out in creating the Extra Step Foundation where we can now improve peoples' lives and make an impact on our neighbors around us. The kids are the motivating factor and the biggest reason behind why we created this organization; but we are very committed to helping out the families that are often overshadowed and in need as well.
Our Mission is to assist underprivileged families who have children battling life-threatening diseases.